Baby Born With Rare Condition That Left Him With Half A Head...

Baby Born With Rare Condition That Left Him With Half A Head Defies Doctors, Celebrates First Birthday

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This is Jaxon Buell. He was born with an extremely rare condition that prevents the skull and brain from fully forming, and was given a slim chance of survival by doctors when he was born.


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“In the first three weeks of Jaxon’s life, when we were still with him in the NICU and there was so much uncertainty, the doctors would continuously prepare us for the worst and to get ready to take Jaxon home simply for ‘comfort care’,” remembers Jaxon’s father, Brandon.

“They truly did not expect him to make it very long. Yet, every day that we were with Jaxon, even from the beginning, we were seeing a small glimmer of hope.”


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“It was that hope in him and the fight he always had that very naturally gave him the nickname ‘Jaxon Strong’.”

And the little boy continued to amaze and inspire countless people through his Facebook page, as he continued to get stronger and stronger.

“Our main focus is keeping Jaxon happy and comfortable and doing our best to give him the best life possible,” says Brandon.


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“We know better than anyone else how precious his days are with us. No matter what happens in the future, we know Jaxon will add something of amazing value and inspiration to this world.”

Back in September, the family celebrated little Jaxon reaching 13 months old. Now he’s 15 months old.

“Jaxon is still here with us, still learning, still developing, still thriving,” says Brandon, “He’s back to smiling at us, always so happy in the morning after he wakes up and takes turns looking at both Mommy’s and Daddy’s face.”


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“No matter who you are or what you believe in, it’s clear that Jaxon’s tiny footprints will have a lasting impression on this world.”

“For his life, I am better, I am blessed, I am grateful, and I am quite simply, one proud ‘Addy’.”


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“I love you, son. Well done, big guy.”

You can keep up with this little hero on Facebook.

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